News item
Archive of: January, 2011
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Leaving no one behind
January 2011
As a culmination of its work on quality and productivity, the Alliance has published a report on delivering high quality, efficient care for people with rare and complex conditions. The report charts recent developments in policy towards specialised services and sets out a range of case studies before going on to make a series of recommendations. These include the:
- continuing value of the principles set out in the Carter Report of 2006 as the basis for a coherent strategy towards rare conditions across the UK;
- need for the doctor/patient relationship to evolve in a way which speeds diagnosis through better referral pathways and the ability of many patients to help inform diagnosis, predicated on well signposted sources of reliable information;
- role of patient organisations in protecting the vulnerable and driving up standards, sometimes through the provision of more innovative services;
- need to ensure integrated pathways, especially through the development of multidisciplinary networks;
- contribution of NICE quality standards or their equivalent to high quality specialised care and outcomes;
- desirability of outcome measures which capture both clinical and patient perspectives with a view to maximising effectiveness and efficiency;
- central importance of patient registries, with more sharply focused datasets helping to keep down costs.
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If you have information about provision of specialised services that you would like to bring to our attention or if you would like to know more about the SHCA, please contact us at: team@shca.info