News item
Archive of: May, 2012
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Future of AGNSS
May 2012
The Advisory Group for National Specialised Services has announced a moratorium on its consideration of new highly specialised services, products and technologies, pending the NHS Commissioning Board taking up its statutory responsibilities in April 2013. Its future thereafter seems uncertain. The Alliance is urging AGNSS’s retention, as well as continued Ministerial involvement in what can often be strategically important decisions with ramifications for all four home countries.
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UK Plan for Rare Diseases Consultation
May 2012
On 29th February, the Department of Health opened a consultation on a UK-wide plan for rare diseases. While the Alliance welcomes the development of a UK rare disease plan as a means of improving care for people with less-common conditions, the proposals currently lack vision and coherence. In particular, the Alliance wishes to see clear accountability providing equitable access to specialised services and treatments wherever you live, allied with a strong focus on outcomes. To provide the necessary leadership in implementing the plan, the Alliance urges the appointment of a national clinical director for specialised services in each of the home countries.
The consultation closes on 25th May, and is available to read here
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If you have information about provision of specialised services that you would like to bring to our attention or if you would like to know more about the SHCA, please contact us at: team@shca.info