Patient engagement is vital in specialised services. Ensuring that the views of small, dispersed patient populations are heard and acted upon has been a longstanding challenge. Some of the initiatives needed to meet this challenge are:
- NHS England should be setting out plans to capture patients’ views of its directly commissioned services as part of its core business, as well as through stakeholder input to the Clinical Reference Groups;
- Information about services and those responsible for commissioning them should be made freely available on NHS England’s websites and elsewhere;
- Health and Wellbeing Boards which have NHS England representatives in attendance should be aware of specialised services in raising patients’ concerns directly;
- Healthwatch is intended to gather patients’ views locally but needs to conduct national oversight through Healthwatch England for specialised services.
If you have information about provision of specialised services that you would like to bring to our attention or if you would like to know more about the SHCA, please contact us at: firstname.lastname@example.org