SHCA publishes a new report calling for a specific focus on rarity in NICE’s methods and processes
Published August 23, 2024The Specialised Healthcare Alliance (SHCA) has published a new report calling for rarity to be prioritised in future updates to NICE’s methods and processes, looking at the impact of changes introduced as part of NICE’s recent methods and processes review.
Following engagement with SHCA members and corporate supporters who have participated in a recent NICE technology appraisal, the report focuses on the following themes:
- Unpacking SHCA members and supporters’ experiences working with NICE on rare disease appraisals
- Bridging the gap between the Single Technology Appraisal (STA) pathway and Highly Specialised Technology (HST) pathway
- Evaluating the impact of the severity modifier in enabling access to rare disease treatments
- Exploring the case for prioritising rarity in NICE’s modular updates
- Recommendations for change
You can read the full report here.