French EU Presidency set to prioritise rare diseases


The Specialised Healthcare Alliance has welcomed news from France that the country has issued a new set of actions after its 2005-2008 National Rare Disease Plan. France was the first European nation to implement a rare disease plan, which has since been taken as a model by others. The plan includes measures to provide support for medical and non-medical products for patients with rare diseases. France is also set to assume the Presidency of the European Union on 1 July 2008 and is planning to take action to improve the care of rare diseases throughout Europe, including a series of events throughout the year.